I just want to preface this by saying, I am truly amazed yet again through our cleft journey. Our speech day yesterday at the hospital was a true learning time for Brian and myself, and feel like we had a whole lot that we didn't know about in relation to Reid's speech. We knew that cleft kids can sometimes have quite a few issues with their speech, yes....but we had NO idea to the degree that this whole speech thing comes into play....here is a tidbit of what we took back with us from the appointment.
First of all, I want to say, I fell in love with the speech therapist right away. She was young, vibrant, excited to meet us and Reid, interacted with Reid from the minute she met him, and was willing to take her time with us...as much time as we needed. I was impressed. I was also impressed how she takes only the kids from Dr.
Gosain (our
craniofacial plastic surgeon) as her case load. She reports directly to our surgeon....and she is in charge of the cleft clinics speech program when we start that in another year or so. She went with Dr.
Gosian to the yearly convention of
craniofacial doctors last week and seems to be very up to date and involved with the current trends in speech therapy. I also like it that there is MUCH communication between her and our surgeon. To me, that is key. ***can I also say that MANY that were at the convention were so excited to meet her, because she works with Dr.
Gosian. I knew that our surgeon was
good..but I had no idea
how good. I guess he is quite the commodity and known through the country as a leading
craniofacial pediatric surgeon.
AWESOME, isn't it????Ok, let me get back on track here. One of the main things I learned was about the palate itself in cleft kids. I didn't know that there is a little hole basically in the back of their throat that they have to really work with especially in feeding and speaking. There are only 3 sounds...M, N, and the
ing sound that does not use the back of the throat to make their sounds. All the other sounds in the alphabet use the back of the mouth. When you say a B...you should feel air coming out your mouth. That is the case for all those tricky consonants for cleft kids...those hard sounds. Well, in a cleft kiddo, the air that should come out their mouth when speaking instead comes out their nose when saying those hard sounds. Hence, making a nasal sound when they speak. I haven't really heard a nasal sound from Reid, but the therapist heard a trace of one with the G sound. She also said that this becomes more pronounced as kids are putting phrases and sentences together. Makes sense...more words being said...more air out the nose...more nasal sounding. Our surgeon does perform a surgery to help correct this nasal sound from about 3-7 years of age....and our speech therapist said that this is done in about 60-90 percent of all cleft kids who see our team. Interesting.
We do have some exercises to work with Reid to help re-direct his thinking to get air to come out his mouth more than his nose...which should be interesting. We are to line up cotton balls on a table and say words like, "Puppy" and watch the cotton balls move. Eventually, the goal is to have Reid move the cotton balls with his speech. We are to see our therapist 2 more times for some more testing in a few months (x-rays of the throat....using barium to see the movement of the vocal chords and palate movement when speaking...all kinds of things to do. Then, we will start clinics with our team, and she will work with us. Reid will also be evaluated by our Help Me Grow chapter speech team and will probably start services this summer locally.
Reid missed his morning nap due to our appointment time, which usually he can adjust to quite well. He actually fell asleep on Brian during the last part of our
eval. That is not like him. Brian commented how warm he was....but Reid is always a furnace. We stopped to grab lunch on the way home, and Reid was cranky...but again, I figured it was because we had messed up his schedule. We got him home, and I really thought he felt warm. We took his temp....yep...over 102. I had no idea!!!! It just really came on him fast. So, through the night last night, he was up every hour just uncomfortable. I did look in his mouth and can see his 2 top incisors coming through. I am hoping they are coming in normally...but it is hard to see. So, with him being up and
fevering all night, I am home yet, again today. My principal is going to be out to get me. It seems that this year I have missed so much with all the junk we have had and of course, the extended time I took for Reid's palate surgery in Oct. He seems to be feeling a bit better this morning, but still has a low grade temp. After he awakens from his nap, I will see how he seems..and make the call to head to the
dr. or not. We'll see.
Well, off to get some laundry done while I am home. Better use the most of my time here. Oh, and for any of you cleft families...have you ever heard of this surgery that I spoke of for the nasal sounding speech??? It was new to me...and just wondered if it was on anyone
else's agenda for their child anytime??? Thanks to all....and picture updates when the big man is feeling better!
Extremely sweet from the start...
Loveable to all...
Laughter- what a sweet sound to hear...
I love those dimples...
Exceptional daughter of mine....I love you, ELLIE!
IRrestibly cute!
HEro to so many...
Incredibly sweet...
LoveD more and more each day....I love you, REID!
Well, we are heading to Cleveland in the morning for Reid's first speech therapy appointment. I am curious what they think. I am pretty impressed with Reid's speech so far. He tries many words and tries to mimic constantly. Wish us luck as we start this new process in our ever-changing journey! I'll keep you all posted! Until then...here is a list of what you will hear Reid say if you ever would visit our house.....here goes!
Sitting in the chair....and not happy about it. Pouty lip and all.
Arching the back. He is SOOOO good at this. Screaming at the top of his lungs. Mind you, this is all taking place in ONE minute's time.
Rolling over...trying to get down...mad...screaming and kicking. And yes, folks...he just turned 18 months. Are the terrible 2's here already?
Ok...the minute is up. Hugs for Ellie and lovies all around. Sad to see those red eyes.
Daddy gets his hug, too. We love you , Reid...you stubborn little guy!
Ellie and her buddy Rachel at the preschool performance. They did such a great job! Ellie and Rachel are just a few months apart in age and go to the same sitter and preschool together. 
Ellie's part in the program was the "February" portion. (they highlighted a song they learned each month). With her is her buddy Sarah. Ellie has been blessed to have met some SUPER friends this year!
Love you, Ellie for making my birthday great! Thank you for helping me open my present and blowing out my candles! Love you to the moon and back....always.
And love you little biggie man. I am glad you liked your Mexican Feast tonight. It's amazing to me that Ellie needed a dogie bag...but not you!!! Thank you for teaching me something new everyday. You are my hero....and always will be. Love you...always.
