Saturday, June 13, 2009

"See you in a year...."

....those were the words our craniofacial team said to us yesterday at Reid's one year post-op lip repair appointment. Really???? One whole year????? Wow. A part of me will actually miss seeing our team. They have all become so close with us and to Reid, it is almost bitter sweet in a sense. We talked about what is next in line for Reid, and here is where we are headed.

1. Continue to see our speech team at Rainbow every 3-6 months for evals.
2. Continue with Reid's speech therapist here at home once weekly.
3. We will see our dental team at Rainbow every 6 months.
4. We will see our ENT in 6-12 months to check the t-tubes in Reid's ears. They look pretty good now. Nothing to be alarmed about.
5. See our craniofacial team in ONE YEAR for another evaluation. On the agenda in terms of surgeries are some nose revisions (2 most likely before Kindergarten) and if needed another palate surgery. Not for the palate itself, but for speech purposes to get rid of any nasal tones from Reid's speech if this develops and can not be corrected by speech services.

Dr. Gosain was very happy with how Reid's lip has healed. In fact, I will quote what he said that gave me goosebumps. While he was examining Reid's lip/scar area he said, "This is one of the most positive outcomes that I have ever had." Enough said. We agree. We are thrilled with the care we have received by our medical team. We are truly blessed. Reid's report came out great. No issues with the lip, gumline, or palate. We will just keep on trucking along, and see our team in a YEAR! And now, to leave you with some pictures from the day.
Kissable lips! He was eating a grape here....or sucking all the juice out, I should say!
Right side view.

Left side view.
...and my favorite....."CHEESE!" This is my favorite scrunchie face in the whole wide world!



7 comments:

Joy Howse said...

LOVE the scrunchie face!!! How awesome to get such a great review on his repair. I love comments like that as well. Hope you have a blessed weekend.

Allison said...

YAY! What wonderful news! Sounds like everything is moving along perfectly! I need to make Abby's appointment . . . it's been almost TWO years since her first lip surgery! I can't believe it!

John, Shannon, Broderick, Camden, and Adalynn said...

Love the sweet smiles. But, I do have to admit...I see his sheer orneriness behind that sweet angelic smile :)

Glad the team visit went well. I finally wrote an email to Dr. Mullekin (in Boston) on Friday night and had a response by the next morning. We are good for a few more years as well. She shouldn't need reevaluated until she is 4 years old. Just as long as we continue with the ENT and speech here in PA as well as the dentist, we are good. I was kind of disappointed to hear that, but also glad. Enjoy your year off. It feels really weird!

Grin and Barrett said...

He is just sooooo SQUEEZY! I am still so tickled about the news. Can't wait to see the kiddo's on Wednesday.

Many hugs your way,
Neeno

steph said...

Remember those first months when you weren't sure what was next? And now look at him...God is good!!!

The Dawkins said...

Yay!!! We go tomorrow to Atlanta for our visit, not real sure what will happen....

Mary said...

How cute! Just curious, how many teeth does Reid have? Ian only has 6...

Hello, and welcome to my page! I am so glad you are here. I am going to try and show you the average life of a 5 year old from my perspective. Mommy and Daddy will help me along the way if I get stuck.

Let me first introduce my family to you. I am Ellie. I am a 6 year old. I live in Ohio with my Mommy, Daddy, little brother Reid, and dog, Sophie. My mommy is a teacher. She teaches nine and ten year olds and loves it. She has been teaching for twelve years. My daddy works with computers. He works hard everyday.

We all love spending time together. I have wonderful grandparents and a terrific extended family. I am a very lucky girl. Thank you for visiting my page. Write to me any time. I love getting mail!!!

Many blessing to you all.

Love,
Little Ski (Ellie)

Mommy and me having cuddle time at Hocking Hills.

Told ya, my hair can be wild! And you thought I was kidding!

Hmmm, Blue's Brother's perhaps?