Friday, May 23, 2008

Last minute advice....

It's Ellie's mom just asking for any last minute advice from any of you WONDERFUL cleft friends out there. Of course, you all know that our surgery day is quickly approaching...and I will be GLAD to take any advice you have. I know that each child is so different, and we will take it a baby step at a time....but if there is something that was really helpful or something that you learned that you would like to pass our way....we would gratefully listen.

We care about all of you so very much, and thank you for all the inspirations that you have become to us. To hear your stories and look at your pictures of your beautiful children has motivated us and allowed us to realize that we are not alone in this journey. We have been humbled by so many uplifting comments and help from all of you from day one of this process. How lucky we are to have found all of you.

We will be blogging about our sweet Reid very soon from now with his new face. I promise to take lots of pictures and post as soon as I possibly can. We are excited and anxious at the same time for this big step. We love Reid's face right now, but we know that we will love what we see on Tuesday. Thanks for your prayers and your encouragement. We truly love you all.


jeanne said...

Best of luck, Reid and Ski family!!!! Lots of good wishes coming your way! :)

Good Remedy said...

Oh my goodness! Surgery is so soon. Reid will be stronger than you can imagine. Other than all the regular advice, wear shirts that won't stick to velcro, like t-shirts. Not sweaters. Holly's arm wraps (Snuggle Wraps) stuck to my sweater all day! Search the Cleft Advocate site for a list of "what to bring for surgery". And to get Holly to drink "the amount" to get to come home, I switched from formula to apple juice. If you want to try this, bring your own! The hosp. offered us regular cafeteria apple juice! She was drinking the formula, just not enough in a timely fashion :-) for the PS to send us home. Clearly, this is not a long term solution, but if it comes to that, will help Reid at least get fluids. The apple juice does irritate the lining of the nose. So this is really short term. Holly was back on the usual formula in no time. I'll be thinking of you this week!

Hello, and welcome to my page! I am so glad you are here. I am going to try and show you the average life of a 5 year old from my perspective. Mommy and Daddy will help me along the way if I get stuck.

Let me first introduce my family to you. I am Ellie. I am a 6 year old. I live in Ohio with my Mommy, Daddy, little brother Reid, and dog, Sophie. My mommy is a teacher. She teaches nine and ten year olds and loves it. She has been teaching for twelve years. My daddy works with computers. He works hard everyday.

We all love spending time together. I have wonderful grandparents and a terrific extended family. I am a very lucky girl. Thank you for visiting my page. Write to me any time. I love getting mail!!!

Many blessing to you all.

Little Ski (Ellie)

Mommy and me having cuddle time at Hocking Hills.

Told ya, my hair can be wild! And you thought I was kidding!

Hmmm, Blue's Brother's perhaps?