Getting a little rest....because of "blankie" from home. That makes everything better!
He hated his IV's....couldn't get cozy.
Friday morning....swollen, but in good spirits.
A little play time with Daddy.
Going home from Rainbow. We were treated so well again, and had a fantastic support team there. As you can see from Reid's smile....he loves his team of doctors that have totally changed us all.
Reid and Ellie's mom here.
We are home...and exhausted to say the least! Reid did well for his palate surgery. I am amazed at the resilience of kids. It truly astounds me. Reid was taken back to surgery at 9:45 am Thursday morning and arrived in recovery around 4:00 pm. It was a long day for us all. Reid was given some pretty strong pain meds in recovery and was out of it until we got to his room around 5:30 pm. Dr. Gosain was able to construct the palate with the tissue that Reid had and did not have to go any other route, which we were grateful for. He was also able to create the front gum line and get it all aligned. One tooth had to come out (which we have for the tooth fairy!) but the other top teeth are still there. They may have to come out later, we'll see. Reid did require a blood transfusion in the OR due to the amount of blood loss that he had. They also checked him through the night by taking more blood to check his levels to make sure all was ok....or he would have had to have another. Thank goodness, all his levels were ok throughout the night. Reid made life tricky for me last night, but I can't blame him. He just felt cruddy. He had some drainage from the nose throughout the night and HATED his IV lines. HATED THEM. So, I held him all night in a horribly uncomfortable rocking chair, and I felt so bad for him because neither of us could get comfy....but he would have NOTHING to do with laying in bed for longer than about 10-15 minutes. It was a long night. Then, right when we would get cozy and comfy.....(for a brief period, at least) a nurse or doctor was in to check things out and would wake him up. Not fun. I know they have to....just not fun!
Ok, my cleft family friends...we DID NOT get arm restraints....or instructions to use any from past surgery. Sersioulsy. Mistake???? I don't know. Reid is on a soft diet for 6 weeks and nothing in the mouth except a sippy cup.....but no restraints????? I don't know. I put him in bed not more than 10 minutes ago...and I am going to sleep near him....but dare I let him go without restraints? I don't want him to poke his mouth and cause an issue, that is for sure! He has a blankie that he holds at night and puts by his cheek....but hasn't had the guts to try for the mouth yet. Too sore. Advice? Lay it on me! I'll take it. During lip repair surgery, we used them for about a week...and then he really did ok because he wanted nothing to do with his mouth/lip area. This time around, I feel a bit more nervous. With all the tissue involved...I just don't want to mess it up!
He has eaten fairly well today. He wants to eat more than drink. He took about 4 ozs. of apple juice today and maybe 3 ozs. of milk. He ate yogurt, ice cream (2 times) , applesause (2 times), a jar of carrots, some bananas w/ pudding...and some pedialite. He has had wet diapers today, which is good, and seems to be happy to crawl around. So, again to my cleft families.....I am so worried about him bumping his face and hurting himself. Did you watch your kids CONSTANTLY during this time period? Reid was NUTSO tonight. Wanting to just get into everything and just dive in to his toys. I was constantly within reach so he doesn't bump himself. So, my question to you....when can I relax a bit? Or do I freak out for 6 weeks? : ) Let me know. I am going to send Brian off the deep end, I think!
Lastly, thank you ALL for your support, unending love, and time you have dedicated to our family. We are grateful to you all. We value each of you....and thank you for being such an important part of our family! More updates to come soon....I am sure. We'll hope for a calm night tonight.....
****Abby....Reid's gift came in the mail today! What AWESOME timing. HE LOVED IT! Thank you for being so special and sweet. Reid sends lots of kisses your way, little one! Thank you so much!