We saw our good buddies (and former babysitter for Ellie) Rachel and her kiddos. In this picture you will see Riley and Reagan (the twins..and I have no idea which is which in this pic...sorry, Rach!), and Rachel holding Reid. So cute! You can visit Rachel at her blog to keep updated with their family. We think the world of them! http://www.thehuntgirls.blogspot.com/
Our site is here to show our daily adventures with our 6 year old daughter and our 3 year old son. We are glad you are here! Welcome!
Friday, October 31, 2008
HAPPY HALLOWEEN!!!!
We saw our good buddies (and former babysitter for Ellie) Rachel and her kiddos. In this picture you will see Riley and Reagan (the twins..and I have no idea which is which in this pic...sorry, Rach!), and Rachel holding Reid. So cute! You can visit Rachel at her blog to keep updated with their family. We think the world of them! http://www.thehuntgirls.blogspot.com/
Thursday, October 30, 2008
Tag revisited
We've hit a new milestone!
Weight- 24.5 pounds -74%
Length- 30.5 inches- 78%
Our doctor gave us the go ahead to turn around Reid's carseat, as well since he has met the height and weight requirements. Yipppppeee! So, I had to take a picture of the momentous day when both my babies are now able to face forward. It's hard to believe that on Monday we will be celebrating Reid's first birthday. Ok...no sappiness now. I'll leave that for Monday......
What was I thinking????
Heaven on Earth...
Wednesday, October 29, 2008
Reid meeting Megan...
I took the kids last night to the nursing home that my grandma is in. They had trick or treating through the halls and the residents were passing out candy to all the little ones. It was really nice. I always want to expose Ellie and Reid to the many different people in our world...young and old...and I don't want them to ever fear going to visit their great-grandma. I don't think I ever had a great amount of going to nursing homes as a young child, and when I was exposed to them, I was a bit freaked out by the whole situation. Ellie is really good about going to see Grandma Mimi...and I want to keep it that way! Well, while we were there...something so neat happened. One of the directors of the facility grew up in my hometown and was just a bit older than me going through school. My parents know her family quite well. She was there last night and we got to talking and so on.....and here....her daughter, Megan, who is nine, was born with a unilateral cleft lip and palate. She has been through 8 surgeries including 3 revisions on her palate and bone grafting and the list goes on and on. What a little trouper she is...and Reid loved her from the minute he saw her. They both just looked at each other when I held him out to her...and he opened his arms up as if to say, "Let me give this little lady a big ole' hug", and so I asked Megan if she would be ok allowing me to take their picture together. She was excited...and as you can see, Reid was loving her!
Megan's care is provided by a hospital fairly close to us, but it isn't the same hospital that we go to. It was interesting to swap stories and hear all the dentistry work that she is now in the midst of at age nine. These kids share a tight bond that only they truly understand. I feel blessed that we were able to meet Megan. I have a feeling that she and Reid will meet again sometime soon. What a great night we had together. I am in awe of the strength of "our kids". We are surely the lucky ones to know such amazing little ones.
Back to his little sneaky ways....
Tuesday, October 28, 2008
"Oh, Medina"
The other day Ellie was singing to Reid with as much gusto and heart as she possibly had in her. I was listening closely to what she was singing, and I knew it was the song, "Oh, my darling, Oh, my darling...Ohhh, my darling, Clementine...." but I had to laugh out loud because her rendition was a bit different. It went like this..."Oh, Medina...Oh, Medina...Oh, Medina..I love you." Medina is a town nearby us. I guess she thinks this song is about Medina....not My Darling. Oh, well...Reid enjoyed it and didn't know the difference! Hope she made you smile!
Monday, October 27, 2008
Who would have thought this was such a fun place?
Sunday, October 26, 2008
Update on Little Big Man....
We had our post-op appointment with our surgeon on Friday, and things look good. No fistulas developing at this point and the front gumline is looking nice. Reid was given the ok to be on pureed foods for 4 weeks total and then off to the races we will go......normal foods after that! BREAD for Reid on day 4 weeks one day!!!! I know he can't wait already! Get this my cleft friends....NO TALK OF ARM RESTRAINST!!!! So, we didn't bring them up!!!!! Did we seriously get away with not having to use them this time around? We watched Reid like a hawk and never left him unattended.....but they never were brought up......wow. That made life easier for us. But, then again, we were constantly with him waiting for him to put his hands in his mouth, or waiting for him to fall.....just always trying to keep up with him. But, we are on day 10....and he has done really well. I am proud of him.
He is doing well though with sleeping. He is back to napping better during the day and has been sleeping all night almost since we got home from the hospital. I am not giving him any pain meds during the day, but he does get one dose of Tylenol with Codeine at bedtime. I think he is also teething at this time....so sleep is important, and the meds help him with that. He does not wake though, for any other doses. He gets fussy and is clingy a lot....but I can't blame him. He has been through a lot in a short amount of time. I am still off school this week to be with him which I am grateful for. Then, I will head back next week in full swing just in time for conferences! Thanks again for caring so much for our family. We are so lucky to have you all in our lives. More updates soon...
Saturday, October 25, 2008
Grocery trips can be fun!
I even got my face painted there. A cute pumpkin!!!! I had a fun time. Who says grocery shopping is all bad???
Getting into the Halloween Spirit....
Friday, October 24, 2008
Decorations
The Rival Game
I can't believe I am posting this....but I am. Triway staff and friends...sorry. Let me explain! I teach for a district other than the one we live in. There is a big rivarly between the school I teach for and the school district we live in. Ellie will go to school in the town we live in....so she is my little Red Rider fan. Tonight our hometown team plays their BIGGEST rival game of the year against Wooster. Ellie wanted to show her support for "her" team. Go Red!
Thursday, October 23, 2008
Game of TAG, anyone????
Ok, Tina....I am going to get you for this one! My friend, Tina, who also as a cleft affected daughter and lives in our hometown has TAGGED me. I figure I might as well get this over with, so here goes!!!!
7 things about me.....that you may not know...wow...this is hard because I am a pretty open book. I'll try!
1. I'm stubborn. Very. Ask Brian. He will be proud of me for admitting this. There you go, Brian...this one's for you!
2. I love tomato juice. Yep. No one else in my family does. Grosses them out. I love, love, love it.
3. I lost 68 pounds my junior year-my senior year in college. Yeah, those were the days! I worked really hard, ran daily, ate right, and poof....it happened. I need to try those methods out again since I am still carting around "Reid weight."
4. I have only taught 4th grade. For the 12 years I have taught...it's always been 4th graders.
5. I have a terribly awful fear of heights. I hate, hate, hate them.
6. I am a very scheduled person. I wish I were more "fly by the seat of my pants", but I like routine and knowing what to expect next. I know....boring, huh?
7. Brian and I met all because of a blind date. Amazing, huh? Who would have thought that here we sit....almost 7 seven years of marriage 2 beautiful kids and a life I absolutely am blessed to have.
So, now time to pick my friends to tag! You guys are now it....run with it...and have fun!
http://www.rachelsjourney.blogspot.com/
http://www.thehuntgirls.blogspot.com/
http://jon-krissy-drew.blogspot.com/
http://iantimothy-marydoodle.blogspot.com/
http://awstoker.blogspot.com/
http://abcfrye.blogspot.com/
http://molseefam.blogspot.com/
I was sad to only "pick" seven friends to tag....but I will play by the rules. Have fun...hope to learn something new about you. Enjoy the day....blessings...
A new look for Ellie????
Wednesday, October 22, 2008
Reid experiencing Fall...
That's a little better, Reid.....still a little "scrunchie" in that nose, though!
It was a really nice fall day today. Perfect for a little walk outside while the sun was shining. Reid seemed to enjoy the air as well.
Cuteness....
He was loving the leaf here. He held it for our entire walk....never let go once. He would just look at it and laugh. Don't you wonder what little ones think about? This picture is my new favorite.
Tuesday, October 21, 2008
Pumpkin time....for real this time around!
Silly Pumpkin Faces!
Sunday, October 19, 2008
An Ellie moment....
Brian- James
Ellie- What is Reid's middle name?
Brian- James
Ellie- What is Pappy's first name?
Brian- James
Ellie thinking this all over.
Tears begin.
More tears.
Histerical tears.
Ellie (through tears)- I WANT MY MIDDLE NAME TO BE JAMES. ELLIE JAMES.
***think she would appreciate that when she is about 12????? : ) Sweet, though. Very sweet. (however a little cut on Mommy since Ellie and her share the same middle name!)
Boys and their toys...
Brian showing Reid the Mustang. Maybe one day it will be Reid's. In a LONG, LONG, LONG time! I can't think about that yet!
Reid very happy about this "machine". Brian revving the engine, and Reid soaking it all in.
Brian showing Reid that proper care is important for the Mustang. I wonder if he got out the q-tips and cleaned the front grill area? And you all who don't know Brian very well think I am kidding??? Think again! : ) Reid will learn well, I am sure.
Day 2 at home post-op
The new face....Scrunchie Face when he is unhappy about not getting all the food he wants! It's going to be a long 6 weeks~
Looking pretty good. The swelling seems to have gone down quite a bit. Still some seeping from the right nostril....not anything from the left. Slept well last night....didn't even get up for pain meds. Fussy during the afternoon into the evenings though. Won't go down easily for naps. Actually, is crying right now...so I need to go soothe. He used to be so good at going down for naps and bedtime...I certainly hope it returns back to normal someday! One day at a time, though....I know.
Saturday, October 18, 2008
Night #1 at home
Well, we managed to get by last night! Reid did well. Thank goodness for my parents and in laws who have taken Ellie until Sunday for us. That is one less thing I have to worry about and can focus all my attention on Reid. That has helped!
Reid was in hyper-overtired-not knowing what to do with himself-cruddy feeling-nose seeping-ear bugging-mouth hurting-yucky mood last night! I think he was so overtired, he just could not focus himself. Poor guy. So, around 7:45, I took him to bed. I rocked him and soothed him a bit until he was really tired, and then laid him down. He went to sleep without much of an issue. He woke up close to 11 pm in time for pain meds. I did give him Tylenol with Codeine for pain management through the night and have not had to use it during the day yet. He can manage with just Tylenol or Motrin through the daytime without too many issues. Putting him back down was a bit trickier. He didn't want me to leave him. I think I had him asleep about 6 times and every time I would put him in bed, he would HOP up faster than the speed of light to catch me before I would head out the room. Stinker! So, I rocked and settled, sang, and soothed. Finally, about an hour later, he seemed ready to go to bed. I put him down, he fussed for a slight period, and went to bed....until 7:15 this morning. I could not believe it. I kept waking to check on him...and he did well. He woke up close to his usual wake up time. He ate well this morning. He wanted a container of yogurt with cereal mixed in and a container of baby food (a fruit). He drank 4 ozs. of apple juice from a sippy cup and about an oz. of milk. What a little man. He played with me on the floor, took some Motrin for pain, and was in great spirits. Around 9 am this morning, he started acting tired, and so I took him up for his usual naptime routine. He went down with no fuss. I am blesssed. He seems to have very slight drainage this morning from right nostril, but nothing from the left. No blood or seeping from the mouth today which is good. I will post pics later....but thank you for your nighttime prayers....they helped us all get some rest that we all needed badly. Well, time for me to grab a hot shower while I can. I will post more later. Much love...
Friday, October 17, 2008
Reid's home!
Getting a little rest....because of "blankie" from home. That makes everything better!
He hated his IV's....couldn't get cozy.
Friday morning....swollen, but in good spirits.
A little play time with Daddy.
Going home from Rainbow. We were treated so well again, and had a fantastic support team there. As you can see from Reid's smile....he loves his team of doctors that have totally changed us all.
Reid and Ellie's mom here.
We are home...and exhausted to say the least! Reid did well for his palate surgery. I am amazed at the resilience of kids. It truly astounds me. Reid was taken back to surgery at 9:45 am Thursday morning and arrived in recovery around 4:00 pm. It was a long day for us all. Reid was given some pretty strong pain meds in recovery and was out of it until we got to his room around 5:30 pm. Dr. Gosain was able to construct the palate with the tissue that Reid had and did not have to go any other route, which we were grateful for. He was also able to create the front gum line and get it all aligned. One tooth had to come out (which we have for the tooth fairy!) but the other top teeth are still there. They may have to come out later, we'll see. Reid did require a blood transfusion in the OR due to the amount of blood loss that he had. They also checked him through the night by taking more blood to check his levels to make sure all was ok....or he would have had to have another. Thank goodness, all his levels were ok throughout the night. Reid made life tricky for me last night, but I can't blame him. He just felt cruddy. He had some drainage from the nose throughout the night and HATED his IV lines. HATED THEM. So, I held him all night in a horribly uncomfortable rocking chair, and I felt so bad for him because neither of us could get comfy....but he would have NOTHING to do with laying in bed for longer than about 10-15 minutes. It was a long night. Then, right when we would get cozy and comfy.....(for a brief period, at least) a nurse or doctor was in to check things out and would wake him up. Not fun. I know they have to....just not fun!
Ok, my cleft family friends...we DID NOT get arm restraints....or instructions to use any from past surgery. Sersioulsy. Mistake???? I don't know. Reid is on a soft diet for 6 weeks and nothing in the mouth except a sippy cup.....but no restraints????? I don't know. I put him in bed not more than 10 minutes ago...and I am going to sleep near him....but dare I let him go without restraints? I don't want him to poke his mouth and cause an issue, that is for sure! He has a blankie that he holds at night and puts by his cheek....but hasn't had the guts to try for the mouth yet. Too sore. Advice? Lay it on me! I'll take it. During lip repair surgery, we used them for about a week...and then he really did ok because he wanted nothing to do with his mouth/lip area. This time around, I feel a bit more nervous. With all the tissue involved...I just don't want to mess it up!
He has eaten fairly well today. He wants to eat more than drink. He took about 4 ozs. of apple juice today and maybe 3 ozs. of milk. He ate yogurt, ice cream (2 times) , applesause (2 times), a jar of carrots, some bananas w/ pudding...and some pedialite. He has had wet diapers today, which is good, and seems to be happy to crawl around. So, again to my cleft families.....I am so worried about him bumping his face and hurting himself. Did you watch your kids CONSTANTLY during this time period? Reid was NUTSO tonight. Wanting to just get into everything and just dive in to his toys. I was constantly within reach so he doesn't bump himself. So, my question to you....when can I relax a bit? Or do I freak out for 6 weeks? : ) Let me know. I am going to send Brian off the deep end, I think!
Lastly, thank you ALL for your support, unending love, and time you have dedicated to our family. We are grateful to you all. We value each of you....and thank you for being such an important part of our family! More updates to come soon....I am sure. We'll hope for a calm night tonight.....
****Abby....Reid's gift came in the mail today! What AWESOME timing. HE LOVED IT! Thank you for being so special and sweet. Reid sends lots of kisses your way, little one! Thank you so much!
Let me first introduce my family to you. I am Ellie. I am a 6 year old. I live in Ohio with my Mommy, Daddy, little brother Reid, and dog, Sophie. My mommy is a teacher. She teaches nine and ten year olds and loves it. She has been teaching for twelve years. My daddy works with computers. He works hard everyday.
We all love spending time together. I have wonderful grandparents and a terrific extended family. I am a very lucky girl. Thank you for visiting my page. Write to me any time. I love getting mail!!!
Many blessing to you all.
Love,
Little Ski (Ellie)